The Metachromatic Leukodystrophy (MLD) community may be a small community, but it’s one that has a strong voice and a shared goal to support those affected by this rare, genetic disorder. Join the effort to unite for MLD to advance hope through research.

Each individual contribution has the potential to help the larger MLD community. Researchers conducting this study are working to improve their understanding of MLD as they try to find ways to improve the outlook for children with this disorder. Shire, a company with a commitment to rare disease communities, is sponsoring this research study to help answer questions about MLD. To see if your child may be eligible to participate, please take our survey below.

Answer a Few Questions to See If Your Child May Be Eligible

The answers you provide will be available only to appropriate study personnel and will be kept confidential and will not be shared without your permission or except as required by law.

  1. What is your ZIP / postal code?
By clicking Continue, you are giving us permission to collect your personal information. To learn more, see our Privacy Policy.